Monday, September 1, 2014

A Difficult Decision


Well, we just wanted to post a quick update about how our family is doing health-wise and to ask for continued prayer.

First of all, Hannah, 2 years old, seems to be doing much better. Praise the Lord! Even though she has continued to test positive for C. diff and still has foul-smelling loose stools, she no longer has signs of inflammation in her intestines on ultrasound and she is gaining a significant amount of weight. She also has had a better appetite (although it still takes a fair amount of coaxing to get a full meal in). With these results, it seems less likely that she has Celiac disease like we had once suspected and the possibilities still exist for infectious causes (although less likely due to the extended period of problems) and inflammatory bowel disease that is currently out of a flare. Please pray that we will have wisdom in how to continue her diagnostic work-up from here and please also thank the Lord for healing her body if not permanently, at least for now and putting some weight on her.

Regarding Caleb, 4 years old, he seems to be growing well now and has also put on a fair amount of weight since being home. He is benefiting from the high calorie foods that we have been serving to Hannah and we are glad to see the weight gain. We haven't had any real concerns about him, but of course is getting the normal infections that would be expected from going to school with a bunch of other 4 year-olds. Thank the Lord that he is growing.

More recently, our concern has been for Hudson (almost 14 months old). Just as Hannah dropped off the curve before a  year old, Hudson also took a dive with his weight at 8 months of age. With Celiac disease being in our extended family, we actually decided not to give him anything with gluten in it until he turned a year-old just to decrease his risk of developing a problem if he did carry a gene for it. That being said, he still dropped off of the charts at 8 months of age. We got some labs done in the US in June and found that he was iron deficient and had the same GI infections that Hannah did and so we treated him for them and he tested negative for all GI infections one month ago. That being said, he has not gained even 0.1 kg in over 7 weeks of weighing him. He has lost all of his appetite and after just a few bites, refuses to eat anything else. He is drinking fluids which is sustaining him, but a child that is barely one year old should be eating and gaining significant amounts of weight rapidly. So, about a week ago, we took him to the hospital and did an ultrasound and found that he had significant inflammation in his small intestines similar to what Hannah had but with negative stool cultures. We decided to get an MRI (Since it won't expose him to radiation like a CT would) in Cusco to see if the inflammation showed any patterns that could lead us to a diagnosis (like Crohn's disease for example which if left untreated can cause serious bowel death, fistulas and abscesses leading to multiple surgeries over a life-time). Unfortunately, the company that did the MRI was less than helpful, told us that they had no oral contrast (very useful in diagnosing inflammatory bowel disease) and when they gave us the reading, didn't make a single comment about the intestines. To top that off, the CD that they gave us of the MRI had images so small, that it was nearly impossible to see much larger organs like the liver, much less the intestines. We called and asked for a better image quality and they said it wouldn't be a problem. So, Crystal went back to Cusco (2.5 hours away on winding roads) to get them and they said that she would have to come back on Monday. After a series of blatant lies that I will not bore you with (6-8 in a row), they sent Crystal on a hunt for a very specific DVD to burn the images that apparently is not actually sold in Cusco, with directions to a street that has no stores that even sell DVD's. We assume it was just to get her to leave them alone. We are finding that the MRI has and probably will be completely useless to us in making a diagnosis and that our chances of figuring out what is going on with Hudson and/or Hannah here in Peru is getting quite slim.

That being said, we want to exhaust our options for diagnostics here before considering coming back to the US. But, we also don't want to cause permanent harm to any of our children by wasting time/money/emotional stress on things that aren't going to help either.

So this is the question of the hour. We know that God has called us to be here in Peru and we have seen great things happen already. We know that God can use us here, or anywhere for that matter as long as we are willing to follow His calling. In our Bible study we were reading James 4:13-15 that says: " Now listen, you who say, “Today or tomorrow we will go to this or that city, spend a year there, carry on business and make money.” 14 Why, you do not even know what will happen tomorrow. What is your life? You are a mist that appears for a little while and then vanishes. 15 Instead, you ought to say, “If it is the Lord’s will, we will live and do this or that.” " We want to be sure of two things.  First, that the Lord is still calling us to be here. We know that He has given us three wonderful children and that they are our priority above outside ministry, and therefore we need to take care of their needs. If we can't do it here in Peru, than that means in the US. But second, we also want to be strong and courageous just like God commanded Joshua as he was telling him about the Promised Land. We know that God is doing great things here and that Satan will attack us in anyway that he can to try and take away our strength. So with that, we know that our God is greater and stronger and higher than any other and that if that is all this is about, we will be fine.

In summary, we would love to have prayer from all of you about the following things:

1. How do we need to proceed in making a diagnosis for Hannah and Hudson
2. How can we best take care of them and make sure that they have no long-term affects from these illnesses
3. Do we need to return to the US for further diagnostics, try other routes here in Peru (Lima) or wait it out?
4. Is this God's way of calling us to come home to the US or are we supposed to endure so that God can be given the glory?
5. Give thanks that Caleb and Hannah are growing
6. Pray that Hudson will start gaining weight
7. Please pray for Crystal and I as the unknown is weighing heavily on our hearts and seeing Hudson waste away is tough to watch.

Thank you all for your continued support of our family and the ministry that God has called us to here! I apologize that I haven't posted about all of the wonderful things that have gone on, but I hope to do so some day soon.

God bless!

1 comment:

  1. Hi there! I was hoping you would be willing to answer my quick question about your blog! My name is Heather and my email is Lifesabanquet1(at)gmail(dot)com :-)

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